How IBD Qorus Works

IBD Qorus: Quality Driven, Care Focused

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IBD Qorus: Quality Driven, Care Focused

Several recent studies show there is a significant variation across the country in how physicians diagnose and treat IBD. Because quality of care directly impacts the health and treatment outcomes for patients, improving and streamlining the standard of care will help mitigate risks and preventable complications associated with IBD care.

  • IBD Qorus has established a collaborative chronic care network for IBD that empowers healthcare providers to share ideas and report quality metrics using a common platform

  • IBD Qorus leaders compare the results of that network over time and across a variety of care settings, such as university and community-based academic medical centers, small faculty practices, and large community private practices

  • Participating providers are then given coaching and performance feedback, so they can learn from one another to improve their levels of IBD care

The conceptual basis for IBD Qorus comes from work developed by the Dartmouth Institute (TDI) for Health Policy and Clinical Practices. This collaboration has resulted in a learning health system  to measure and improve quality of life for adult patients by enabling symptom tracking, self-management, and shared decision-making between patients and their providers. The learning health system can also facilitate their communication during and between visits.

  • Led by the IBD Qorus team, TDI and consulting from Deloitte, technology is being designed and tested to collect data and create a rapid knowledge-sharing environment based on patient-provider interactions.

  • IBD Qorus' technology platform will enable data analysis and patient population management, and will allow participants to look at their own data.

  • Patient-reported outcomes, concerns, and disease activity will be integrated into a comprehensive, patient-centered dashboard, and used to inform decision-making and promote patient-provider co-production of treatment.

  • Findings from each participating site will be reviewed and analyzed at a macro level.

  • Organized data and other information will be shared to help assess and create best practice.

Patient First, Care Driven

IBD Qorus began as a small group of dedicated physicians and researchers who met to discuss the variations in care of adult IBD patients. Initially dubbed the Quality of Care Committee, this team was the first to identify and prioritize key treatment processes and patient outcomes.

Their mission to improve the quality of care delivered to IBD patients continues to guide IBD Qorus today.

We have big plans for IBD Qorus:

  • Treatment of approximately 30,000 adult IBD patients

  • An expansion to 30 different sites

  • Each site will include lead physician as well as a quality of care team focused on IBD Qorus

IBD Qorus is also partnering with the Foundation’s IBD Plexus, the largest and most interconnected data and information platform in IBD. The collaboration between the two initiatives will allow researchers to integrate, compare, and analyze quality of care data with the scientific and patient-reported data from Plexus' research and patient database.

That will translate into novel research studies, identification of better IBD treatments, and, ultimately, a cure.

IBD Qorus Quality Improvement Methods

IBD Qorus sites are working with the Institute for Healthcare Improvement (IHI) to better apply what we already know about the gaps in day-to-day clinical practice that affects IBD health outcomes.

  • IHI's "The Breakthrough Series" (BTS) bridges that gap between science and its application to patient care by improving what participants can easily learn from each other and recognized experts in key topic areas where they want to make improvements.

  • The collaborative BTS model is organized into a series of cycles, with each cycle kicked off by an in-person learning session and follow-up action period.

  • The first BTS for IBD Qorus focused on urgent care needs, an area that is an important but under-recognized quality of care issue in IBD. After training in quality improvement (QI) methodology and application, patients and providers met in a learning session to learn from QI experts and to share their experiences, challenges, and innovations.

  • During the follow-up action period, the sites focused on measuring and improving various drivers of access to urgent care. Each site  developed specific goals and began using customized data-collection tools to measure their progress over time. Monthly calls were established so sites could learn, share, and further develop their expertise in QI methods.

  • Overall findings are then disseminated through presentations and publications to improve the standard of quality care for IBD.

The Promise of IBD Qorus

There is an urgency to our work with IBD Qorus. Discussion of changes to the Affordable Care Act and the entire healthcare system in the United States means we must work toward more consistent, quality outcomes for IBD patients. This can only be achieved by a comprehensive, systematic initiative such as IBD Qorus.

We are confident that IBD Qorus-generated data and findings will contribute to the development of healthcare policies and strategies that affect IBD care worldwide. We are hopeful this will include better efficiency and a reduction of healthcare management costs.